Ivan needs a drug

Ivan will soon be 17 years old. Tall, handsome, taller than his father. He looks like a perfectly healthy child. He has been ill since childhood, the guy has a difficult diagnosis: cryptogenic epilepsy (Lennox-Gastaut syndrome) and he constantly needs outside care. He can not go out on the street alone. Parents are forced to lead him by the hand.

His speech resembles babbling. Sometimes he speaks separate words. The guy is friendly, but jealous: he tries to attract the attention of his family to himself. Ivan has an older sister, whom he loves very much, she is 20 years old, a student of one of the universities of Rivne and is now on distance learning. The guy is interested in everything, so he often interferes with her during training.

Ivan's parents have experienced a lot over the years. Constant rehabilitation, worries related to the health of their son, they are interested in methods of treatment and development, they turned to various specialists, tried the introduction of immunoglobulins, plasmapheresis.

Every year in spring and autumn, for a month, Ivan undergoes a rehabilitation course at the regional rehabilitation center for children with organic lesions of the nervous system and mental disorders. There, the guy is working with a neurologist, psychologist, defectologist, reflexologist. Classes give results: Ivan began to interact better, seeks to communicate, his passive vocabulary is enriched, the guy dresses, eats and drinks on his own.

In the courtyard of the house, my father equipped a basketball hoop. Ivan can leave the ball, but not for long. Interest quickly disappears. He watches with interest the programs about animals, he especially loves about horses. Relatives note that Ivan has a heightened hearing, he often hears what the ordinary human ear cannot hear. Now the guy has a difficult period, he is growing up, has become more active and less obedient to adults. Together with dad, Ivan goes to church. Patiently worth the whole service. You can't tell by it that the child is sick.

The guy is constantly taking anti-convulsive drugs. Based on the results of encephalograms, foci of seizure activity are recorded.The convulsive state can only be removed with medication. The domestic drug does not help Ivan. And foreign is very expensive. The boy's mother works as a teacher in a kindergarten, his father is a land surveyor at the village council. Parents turn to caring people for help.