News July 2026

When Bilal was born, his mother taught him how to suck and swallow. He began to hold his head up, sit, and crawl. But children with Emanuel syndrome cannot learn to roll over or walk, and because of their congenital deafness, they cannot speak.

The only food Bilal’s body can digest is Resource Junior formula. Maryam feeds her son every three hours, day and night. One can is used up every 24 hours.

To provide Bilal with this special formula for a month, we need to raise 18,324 UAH.

Emanuel syndrome is a rare genetic disorder characterized by muscle weakness, developmental delay, and a congenital heart defect.

Bilal is constantly plagued by pain and colic. Maryam often takes her son for walks: he feels better in the fresh air. But he can only fall asleep in his mother’s arms.

Maryam is raising her son on her own. Her life consists of round-the-clock care for him and sleepless nights.

Please support Bilal. Every donation you make will help provide the boy with the special formula he cannot live without!