Angelina: how expensive is life?

Despair, anger, weakness... When a child is born with an incurable disease, you experience a storm of feelings. But you need to accept the reality and to learn to live with it. Baby Angelina has cystic fibrosis – this disease affects the whole body, damaging the vital functions: food digestion, growth... breathing. With cystic fibrosis, people can live a long life, but all the necessary support is expensive. And the girl wants to live, to dance and sing! And the girl wants to go to the 1st class in September! And you need to be in time. 

The family tried to cope on their own during the first years. But they don’t succeed. A cystic fibrosis is a hard enemy, there is no indulgence. Each element of therapy, every minor thing is important. The girl doesn’t digest food as healthy people do - you need to take enzymes additionally, add special food, and drink supporting medications for the liver. Expectorations in the lungs are too thick and viscous, it's hard to clear the throat, expectorations clog the bronchi blocking breathing, bacteria are planted in it and lung infections become chronic... To deal with this, to clean the lungs and breathe, you have to do inhalations every day, special physiotherapy exercises and massage, to take medicines, and to sterilize all equipment in order to reduce repeated self-infection.

Angelina does not know that her life is so expensive. She wants to sing and dance. She is planning to go to school. She had to miss one year because the recrudescence happened too often, but she does not intend to miss another one. Help her, please, do not give up ahead of time!

Name: Kulyk Angelina, 27.09.2011

City: Posunky village, Dnipropetrovsk region

Diagnosis: cystic fibrosis