Give a chance for a full life. 2
Give a chance for a full life. 2
Completed

Give a chance for a full life. 2

The project is carried by
Started: 13.06.2017
Kiev
Completed
Total collected
41051.80 UAH
Funded in percents
100%
Needs
41051.80 UAH
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From the letter of the boy's mother: "Help the boy live fully, for him every centimeter is important! Thank you in advance for the indifference to someone else's misfortune! When I gave birth to Sasha, already in his first year of life, I noticed that the child is lagging behind in growth. Before 5 years doctors did not make any diagnoses and said that this is a constitutional delay in growth because I myself am not very high.

Every year I went to the doctors and told them: "Well, something's definitely wrong." My son was very different from his peers before the age of three. Then one doctor assigned us an analysis for hormonal examination, and here it all began. Analyzes, insulin-like growth factor was reduced, on the basis of it in the hospital in the hospital there was a survey and samples with clonidine, the blood test for the release of growth hormone was taken all night long as it is produced at night. The result showed that the growth hormone is not clearly produced. We were diagnosed with "pituitary nanism," which requires lifelong hormone therapy for growth in the control of the thyroid gland. And I learned this when I was 6 months pregnant with my second child.

This is a rare disease, and such children must be provided by the state with artificial growth hormone. But in addition, that we were given a substandard drug, and even with interruptions in treatment (which in no case can not be tolerated), we did not grow on it, and in addition to this, the drug raised blood sugar. If we take Zomakton, growth was stable, and all tests were normal, but I do not have the means to buy a quality drug at my own expense. And time goes by, I need to treat my son now, to change the final growth of the baby, because he has not only a small growth but also the internal organs are reduced in size, which affects the work of the whole organism.

We have been on treatment for 2 years, but I have no money for medicines, and the dose of the drug increases with age. Now for a month, we need 7 ampoules of Zomakton (1 ampule costs almost 3 000 UAH), and further will be even more until the growth zones are closed. This is determined using the X-ray of the hand, which we need to do every year. After this, the child is transferred to a minimal but lifelong dose to maintain the quality of life. In addition to the use of growth hormone (this is a daily subcutaneous injection before going to bed), we also need pills, hormonal tests, and money. With treatment, we grow 8-10 cm per year, without treatment - 3 cm.

We have a chance to change the future of the son, but without the help of people to cure such a child is unreal! Time goes by,  we need to be treated every day, and time to grow, there is only until the closing of the growth zones. That's why I'm asking for help!".

 

Name: Smitiuh Oleksandr, 20.12.2009

City: Kiev

Diagnosis: pituitary fascism

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Supported
Anonymous help
16.01.2018 10:58
203.92 UAH
Anonymous help
16.01.2018 09:30
51.01 UAH
Anonymous help
16.01.2018 09:30
100.00 UAH
Anonymous help
16.01.2018 09:02
500.00 UAH
Назарій Кобильник
16.01.2018 07:45
100.00 UAH
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