To give battle to a genetic malaise

One and a half meters on the height and weight of some 36 kilograms. Bogdan Koval is 14 years old, but this guy does not look at his age. Bogdan lags behind in development because he suffers from a serious genetic disorder – Opitz-Frias syndrome. The boy does not like, but without a hearing aid, he does not hear at all. The child's body is underdeveloped, the chest and feet are deformed. The tendons on the limbs grow so slowly that pulling muscles, handles and legs Bogdan turns off the tension. If they do not heal, they will become numb and the boy will never be able to move.

One and a half meters on the height and weight of some 36 kilograms. Bogdan Koval is 14 years old, but this guy does not look at his age. Bogdan lags behind in development because he suffers from a serious genetic disorder – Opitz-Frias syndrome. The boy does not like, but without a hearing aid, he does not hear at all. The child's body is underdeveloped, the chest and feet are deformed. The tendons on the limbs grow so slowly that pulling muscles, handles and legs Bogdan turns off the tension. If they do not heal, they will become numb and the boy will never be able to move.

Bogdan was born not like other children: a hernia on the tummy, inability to absorb food through constant bulging, subsequently – the lack of concentration of the eye, even squeeze the pen into the cam does not work out. "Congenital genetic ailment, in the long run – deep injury", the words of doctors, who instantly turned life into hell. However, despite disappointing forecasts, Bogdanchik learned to keep his head, then sit and talk in a little way, and in half a year old – went. This is not a miracle, but the result of everyday mom's efforts. Eugene's mother did everything to minimize the manifestations of the illness. Every month her son went through a massage course. Behind Bogdanchik already several operations. In order for him to have a chance to fight the illness, Eugene left the house and moved to Kyiv region. At 9, the boy went to the capital's specialized boarding school for children with cerebral palsy and poliomyelitis. The woman himself, in order to be closer to her son, settled there for work, first of all, dishes, now - helping educators.

Now Bogdanchik it is extremely necessary to undergo a course of rehabilitation in the Center of Real Inclusion "Erudit" worth 34 900 UAH. For this money, a speech therapist and a psychologist will be busy with him every day, doctors will rattle their arms and legs with their sickness, so that they become more elastic, and the child will receive modern 3C therapy. This is a method based on the development of basic psychomotor skills that adapts behavior: it teaches autonomy, communication, discipline, the desire to try something new and the joy of success. The main thing – Bogdan will pass the so-called "BOS"-therapy, which will take away the hidden resources of the child's body: learn to relax, cope with fears, depression, and fatigue.

Bohdanchik struggles with every chance, learns new movements, tries to step on the legs. He is a very focused boy. His mother Eugene invests all his physical strength in an unequal battle with a genetic disorder, however, in order to resist it, it must also be material and material. Unfortunately, there is no such single mother. We can give Bogdanchik a chance to live as much as possible a valuable life with you.

Name: Koval Bogdan, 27.01.2003

City: Nova Syniavka, Khmelnytskyi region

Diagnosis: Optic-Frias syndrome, state after surgery for equinoplasovarus deformities of the feet, bilateral sensorineural hearing loss, kyphotic posture, extensor set of knee joints, general variable immunodeficiency, recurrent bronchitis (remission)