Help Rustam live, but not suffer

Rustam is 16 years old. Throughout his life, Rustam suffers severe pain. Every day for several hours goes on unbearable dressings. Rustam is a baby butterfly. His diagnosis is bullous epidermolysis. The boy's skin is so fragile that even mom's caress can harm him!Rustam was born with a shocking rare diagnosis. Neither parents nor doctors were sure whether a boy would survive. No one gave a guarantee that a child would live up to 2 years old. 

Rustam spent the first 3 months of his life in the walls of the hospital. On an extract, parents were advised to treat the baby's wounds on a water-based blue and bandage. But normal bandages do not fit him! They dip to the wounds, and simply do not remove them, it's impossible either to tear off with the skin, or to smell, and even after that, all the same harm.

The family lives in a small town, nobody has ever heard of such children there, and all the more have not heard of such treatment. There was a case when Rustam took blood from a finger, a nurse in rubber gloves pulled that finger so much that she removed almost all of her skin! The boy was crying, his mother was crying, and the nurse said: "Mom, calm down! If the child is crying, he is developing her lungs!". Unfortunately, this courageous boy knows what pain is, and has known about it since childhood. But he wants to live, not suffer! As in any child, Rustam has a dream – to become a programmer. And he is already taking the first steps towards its implementation – there are already a few test sites on his account.

4 hours daily. So much time Rustam takes to bandaging all wounds. The procedure is extremely fragile and difficult, both physically and morally. The pain is so unbearable that sometimes the boy even screams. But without this in any way. If he does not handle the wounds, they will begin to bleed and wrinkle. Rustam had almost grown fingers and toes, his tongue to the sky was also half stuck, causing the boy to have problems with eating. He constantly needs vitamins and appetite preparations, ointments and special bandages that do not dry out on the skin. All these drugs are imported and very expensive, without our help – the family cannot cope on its own.

In September you could help Rustam by sending an SMS to the number 88007, which exists precisely in order to solve the acute problems of adults and children caught between life and death. After sending an SMS to the number 88007, 5 hryvnias from your account are transferred to the project "Help Rustam live, not suffer." 

Name: Tymoshenko Rustam, 05.03.2002

City: Bobrovytsia, Chernihiv region

Diagnosis: congenital epidermolysis bullosa, dystrophic form, erosion of the oral mucosa