Little Evelina wants to run

Evelina has got ISP illness. Intellectual development is normal. Hands and arms are affected the most. In order to continue medical treatment, she must regularly undergo courses of rehabilitations. Doctors recommend physical health improving course in Simferopol city where specialists from China work. They use advanced manufacturing sciences in therapy. This treatment costs 31 thousand hrivnyas -the mother does not have this sum.

‘What do usually girls do at her age? They play with dolls, ride the bike, jump on the trampoline, they hugs their mummies tightly with their hands, and say many kind words. And how is my daughter’s life fulfilled? Never-ending visits to medical centers and hospitals; medicine, injections massages; trains, packing travel bags, therapeutic exercises, pain, pain…

My daughter was born on the 39th week, the labor was rapid, vesical cervix was hardly opening but the doctors said ‘she will give the birth, she will give the birth’. Finally they made me Caesarean operation and injured newborn’s beck vertebrae C1 –C2.. The baby had to stay in intensive care for a month: 3 weeks she was connected to pulmoflator and 1 week in vacuum. After that she was taken to newborn pathology department.
After that long and hard 2 months therapy we came back home and was extremely happy. Everything was out of the wood and we thought that from now on little Eveilna would grow stronger and stronger.

But when we came home, Evelina began to cry intensively, was very nervous, her muscle tone rose, especially in her arms. Numerous examinations of brain, orthopedists, neuroscientists- all assured that everything would be ok, it would pass away, and recommended me to undergo massage. Every month we underwent massage, therapeutic exercises, wax treatment. But when it was a time for Evelina to sit- she was falling down as a weeble wobble and seemed not to realize what was expected from her.

We began to worry and came to other doctors. They diagnosed the ICP syndrome. It was a big shock for us. But we did not accept this as a final verdict.

Now Evelina is a two years old girl. She is able to hold her head, roll over, sit a little bit. She is eager to walk! Please help us to give her a happy childhood!

Alena Stepanitskaya, Evelina’s mother.

Name: Stepanitskaya Evangelina , 3years old.

Location: Martynovka village, Krasnoarmeyskiy district, Zhitomir region

Diagnosis: ICP, spastic tetraparesis syndrome