His skin is thinner than the butterfly wings

Sukhoruchenko Mykhailo was born on September 8, 2009. He was born without skin on the right leg, the so-called "socks effect", that is mean that skin was not exactly along the perimeter of the toe. Misha's mother immediately realized that this is a terrible disease, which took away her first son, who lived only 2 weeks. Mom knew one thing, that none of the doctors know anything about this disease. She was told that they were the first, and if anyone was born with this disease – no one survived, and indeed, there were no records of such patients in the state, but that did not mean that they were not! 

If you ask him mother, what she remembers, she will say only one thing – many, many pain, when you try to be strong in the eyes of the child, and at nights you cry in a pillow from what you do not know how to help your son, because his skin is so fragile, that from the smallest touch it slides or blown blood blisters equivalent to a burn of ІІ-ІІІ degree.

"When Misha learned to walk, it was not once a fall, no matter how I tried not to save him. Sometimes, because of inertia, you want to support the child, and you inflict more wounds on him. One day I caught Misha's hand so that he would not fall, and the skin from his hand would peel off like a glove – it's scary to mention... All the bandages that we glued-dried up, the bandages came off the skin. I did not know how to dress a child, so that the wounds would not get into clothes, and that was constant! We soaked and tore them off, but there were bleedings, which again did not close than ... ", Misha's mother says.

This disease is completely ruthless, except fragile thin skin, like the butterfly's wings, the bullous epidermolysis affects all organs, the esophagus, the mouth, teeth, bones, children can not fully eat, as they injure the mouth and esophagus, they have all the food that has been knocked down and filtered... Misha always wants to be like all children – with good healthy skin, eat food that can be chewed, which is tasty, so that nothing hurts, run and play football, volleyball, and other outdoor games. He is very exhausted by the constant pain that he experiences. Daily painful dressings are a torture for both: mother and child.

To ease the pain, they need special bandages that cost thousands of hryvnia, special food and much, much more. Please help!

Name: Sukhoruchenko Mykhailo, 08.09.2009

City: Sumy

Diagnosis: bullous epidermolysis, dystrophic form