His skin is like the wings of a butterfly. 3

Mikhail was born on September 8, 2009, with a severe diagnosis - bullous epidermolysis, also called BUTTERFLY syndrome, as the child's skin is as vulnerable as a butterfly's wings, if you touch the wings, the butterfly will not fly… and Misha: if you take his hand to greet, then his skin will immediately shift and be filled with a liquid of light or blood color, or completely peel off, this applies to the whole body, even the internal organs suffer, and the oral cavity and esophagus suffer. The wounds that Misha receives are equivalent to burns of the II-III degree, this unbearable pain accompanies the boy all his life, but the family has learned to live with it.

"I am very grateful to the concerned people who helped raise funds for the first time for my son. For which everything necessary for skincare, medicines, and bandages was purchased. God bless you all with good health and well-being !!! Thanks to all of you, we had much more pleasant and joyful days)))", Mikhailik's mother Ksenia thanks.

Misha again underwent two operations to dilate the esophagus, the narrowing was critical, he could not swallow even a drop of water. This time the operation was more complicated than the previous ones because the esophagus was difficult to expand, but Misha had a hard time moving away from the operation, shouting, could not recognize his mother, and kept calling her… "I wanted him to hear me, but he did not realize that I was near and that everything is over, my heart was torn to small pieces…" - mother shares with us.

Two surgeries of 2 weeks were planned to allow the wounds in the mouth and esophagus to heal. Both were done, after the second Misha, it got better.

There is also good news – Misha goes to school, is in inclusive education, Misha has friends, he studies well, is very smart, but prefers to play. Rejoices in the smallest pleasures, enjoys life, does not really want to grow up… also likes to admire nature. He trusts people and sees only good in everything.

Unfortunately, caring for the wound surface, maintaining the body, is very expensive, the mother is not able to provide her son with everything he needs. Some dressings are purchased by the state, some by the city government, but this does not cover 100% of the needs. Many things need to be purchased at your own expense.