News May 2026

Maryam devotes all her energy and time to her son’s health. But Bilal’s condition has worsened—he often cries from the pain and asks to be held. We are asking for your support for this family.
Bilal has Emanuel syndrome. There are very few children with this condition in Ukraine.
This rare condition manifests as hearing impairment, lack of speech, muscle weakness, developmental delay, and a congenital heart defect.
Bilal needs Resource Junior formula—it is the only one his body can digest. Maryam feeds her son every 3 hours, including at night. One can is used up per day.
To provide Bilal with special formula for a month, we need to raise 18,324 UAH.
Maryam is raising her son on her own. All the care, worries, and sleepless nights rest on her shoulders.
She is his mother, nurse, caregiver, and steadfast support all in one.
It was Maryam who taught Bilal to suck and swallow. Thanks to her, he learned to hold his head up, sit, and crawl. But children with this syndrome cannot learn to roll over or walk, and due to congenital deafness, they cannot speak.