When consumables are a vital necessity...

7 years of survival in the conditions of home intensive care... Constantly with an outstretched hand and fees for consumables are depleting mentally and physically, but it is impossible otherwise. Ruslan is a smiley, the boy is dependent on a ventilator. He is already 10 years old. Already – because this is life contrary to all forecasts. It seems that an eternity has passed since the moment when the only desired child was born – healthy and loud, broadcasting about the great Miracle for the family. Even in the most terrible dream, one could not dream that due to a broken gene, the baby has an incurable rare disease.

Ruslan has few happy memories of his carefree childhood. From the age of three, severe tests of survival began. The doctors did not give any chance, and moreover, they shouted the mother, already killed by despair, with sentences: “He will die anyway! No need to save! It's hopeless!". After many trials, pain and tears, an ordinary family, with the help of volunteers, was able to create conditions for a comfortable resuscitation at home, so as not to be constantly in the hospital. A seven year old child is a carrier of a tracheostomy. The constant search for consumables for the ventilator and tracheostomy exhausts the family, because there is no help from the state, and the monthly costs are five times higher than the social pension. Only the father, the mother 24/7 with the child in care works, as well as a doctor, a rehabilitation specialist, a nutritionist... All organizational chores and responsibility fell on the mother.

Being in forced isolation, Ruslan has not lost faith in God, is socially active, studies in the fourth grade, has friends, does not complain and is always in a good mood and smiling.

The big wish of this extraordinary child is to keep mom from crying! That is why we ask you to support the project – to purchase consumables for a year. This will help the family breathe out with relief, return a smile to the mother's face, smooth out the worried wrinkles on the forehead of a loved one.