Step by step: the story of Danyil's struggle. 3
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Danyil is 5 years old, and he already knows the value of every independent step. The boy was born with a severe developmental disorder of the central nervous system that binds his muscles like invisible shackles and prevents his body from obeying him. Where other children simply run, Dania must engage in complex negotiations with his own coordination every single second.
His path is filled with incredible patience. Despite diagnoses that sound like a verdict, Dania works in rehabilitation with a perseverance beyond his years. And the results give hope: at three years old, he took his first steps. It was a true miracle – but the fight did not end there.
The boy is now at that critical age when stopping is not an option. High muscle tone continues to cause persistent gait disturbances, and a lack of coordination makes every movement unsteady. Dania's mother does everything she can so that her son not only walks, but does so with confidence, can take care of himself, and feels part of the world he so loves to explore.
Dania is a very bright child. He adores fairy tales, is fascinated by technology, and despite not yet speaking, has learned to communicate with those around him through emotions and a tablet. He strives to be active and wants to play with his peers, but his body still needs professional "correction."
Every rehabilitation course gives Dania the opportunity to teach his muscles to relax and his brain to better control his movements. It is a chance to improve his gait and reduce the tension that prevents him from living without pain.
His mother raises him on her own. Paying for the next course of sessions – where every detail of movement must be worked through with specialists – is simply beyond her means. The costs of ongoing therapy have long since exhausted the family's resources.
We ask you to support Danyil. Your help is an investment in the confidence of his steps. It is a chance to ease his spasticity and give this strong child the opportunity for a full and independent future.
Help Dania stand firm and move forward!
| Full name: | Trutaiev Danyil, 20.01.2021 |
| City: | Kharkiv |
| Diagnosis: | congenital malformation of the brain development hypoplasia of the corpus callosum, hypoplasia of the cerebellum. Hemispheric cortical hypotrophy, hydrocephalus (open form). Tetraparesis. Level 2 motor disorders according to the GMFCS classification. Level 1 right hand function, level 2 left hand function according to the MACS classification. General underdevelopment of speech level 1. Dysarthria. Dysplasia of the right hip joint. Equinovalgus deformity of the feet, scoliosis of the 2nd degree |
| ID: | 11076 |
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