A butterfly that wants to fly! 2

Ania has been living with bullous epidermolysis for 16 years. Can people get used to this disease? Perhaps the desire to be healthy is as strong as the desire to be happy. Only this is not always attainable. The bully epidermis is a rare incurable disease with about 200 people living in the whole of Ukraine. Living with this illness is unusually difficult: the human skin is so tender and thin that any contact with something – causes its severe damage. Children who are sick with bullous epidermolysis are usually covered with wounds, so they need to be worn with special materials that do no harm, as well as smear a huge amount of skincare products. 

Immunity, of course, is weakened. Problems with the epidermis (skin) are present not only externally but also inside the body, which means that a person can not eat ordinary food. For this purpose, special mixtures have been developed. In addition, fingers on the arms and legs often gather together and people need to do an operation to separate them.

In general, we have tried to describe the illness our Ania suffers from. Anya is a butterfly who wants to fly. The butterfly is because she is a very gentle girl, fragile in her health, and inside. When we handed over her medicines and dressings after the first gathering, the girl burst into tears, seeing the whole amount, and realizing that it would not be necessary to worry about such necessary purchases for several more months. "She wants and tries to fly" Ania is very creative, she has a desire for photography, she dreams of a camera that it would be convenient for her to hold in her hands, because the fingers on the pens grew, she still has a lot of dreams, and we really want to so that she could implement them!

We can not always be healthy, but in spite of the disease, we can try to achieve happiness. All medicines: ointments, creams, special shampoos that do not harm the skin, mix for food, bandages – extremely expensive! The girl lives with her mother in the Donetsk region, and they can not provide themselves with everything they need. The data of medicines on which we have opened the collection – it will last only 3 months, but for a small family, it is already a tremendous help! Your small contribution today can greatly ease Anya's life and give her hope for the future! Thankful for every kind heart!

Earlier at UBB, we have already collected funds for Anya. View the previous project you can by the link.

Name: Anna Filippova, 05.12.2002

City: Velyka Novosilka, Donetsk region

Diagnosis: epidermolysis bullosa, dystrophic form, protein-energy deficiency 3 degree