Minimum to survive

"Mom! Shall we call her Angelina?"б the name to the girl was chosen by her elder sister. The fortune was chosen… Was it God or a chance? The girl first fell sick when she was 3 months; the doctors’ diagnosis was asthma, the same as her father had. But mom Oksana felt that everything was more complicated, bitter. She was trying to find out. Even when the usual analysis showed the norm, she insisted on DNA one. Cystic fibrosis - Angelina is the only one with such diagnosis in her city. And her lungs can’t breathe themselves.

90% is an oxygen saturation lower limit of normal. Lower limit is when the organism is not well at all, but if functioning in the intensive mode, it can live out the unfavorable period. But what if this period is endless?

"The state is mean. Pale. The oxygen falls up to 87% during infection attack. And infection attacks occur every month. It happens sometimes that we just leave the hospital, have no time to have rest at home and again the temperature is high", mother says. The patients with cystic fibrosis have chronic lungs infections, they can’t be completely cured. But good treatment helps to keep control of them and do not allow to damage the organism. But it is too expensive for an ordinary family.

Elder Kristina is a school girl; their father helps the family from time to time only… There is not a lot of working places in the small town, the grandma went for earnings to Italy, and the mother works at the market leaving 8 years old Angelina to do housework. Many people live like that and one can survive. If only there is no cystic fibrosis… Angelina needs a good quality inhalator, home trampoline for everyday physiotherapy exercises and oxygen concentrator – a minimum set of equipment not to suffocate, live and grow.

Name: Melnyk Angelina Aleksandrovna, 07.01.2009.

City: Mohyliv-Podilsky

Diagnosis: Cystic fibrosis