Present Maria to mom! 4

Masha was born at 8 months of pregnancy in seriously bad condition, prolonged mechanical ventilation of the lungs caused cerebral edema and hemorrhage. Doctors did not give comforting predictions. But Masha’s mother is not one of those women who will complain about her fate, she did not give up and started working with the baby. Passed a lot of doctors, clinics, rehabilitation. Now the girl really needs regular courses of treatment in rehabilitation clinics and the constant use of anticonvulsant drugs.

To understand how this family lives and how it breathes, it’s worth reading a letter from mom: "My daughter is not like the others, but this does not mean that I do not know how to enjoy her. Masha must be compared with her past, how she could not breathe, react, and what she is now, then every day will be a small victory. We are not fighting for the quality of life, but for Life itself. Masha is a hero for me, the more difficult a new achievement is given to her, even if it is small and not noticeable to others, the more joy it brings for me! How easy it is for an ordinary child to learn everything, and how much effort is needed to master the same skills for a special child. Now I understand that the most important thing in the acceptance is just to love your daughter, give her everything she needs to recover. Not to dream about health, but to make the dream a Goal. To appreciate the important things!".

In the evening, Masha falls asleep and her mother can exhale a little and do something for yourself. But for herself - this is also for her. She dives into the Internet in search of suitable methods, centers, study opinions, ask questions, seek help everywhere and from everybody. She is driven by the thought that there is something or someone who will help. And what a pity that it is only 24 hours in a day. It’s interesting to live!

"My life is diverse and amazing! I have been to many places and cities in search of help for Masha. I met a lot of interesting people, I drown in a lot of information, terms, scientific and not only theories, but I also grab at every opportunity. And how difficult it is to make a choice! I know that an unhappy person will never make another happy. So I try my best to be happy no matter what. Fight and find! I have to step over many obstacles! And I do it every day. I learned not to notice oblique views, official misunderstanding. I want, like all parents, that my daughter will be valuable. My biggest fear is what will happen to Masha when I am gone. I fight for her need. Even if it’s difficult for Masha to do something, she is worthy of attention! We fight for every right movement, for such children time goes differently, more time is needed for their development. And it happens faster with your support".

UBB donors helped Masha go through a series of rehabilitations (previous projects here) after each of them Masha has results. In April, the clinic again awaits the girl for a course of treatment. Help Masha to get there!

Name: Kononova Maria, 08.02.2004 

City: Kramatorsk

Diagnosis: congenital malformation of the brain in the form of dystonic tetraparesis