News May 2025

Alina devotes all her free time to her son Ilya: she reads books with him, moulds plasticine, teaches him to write and count. Unfortunately, the fight against the disease takes a lot of energy from the loving mother. We ask you to support Alina in this exhausting struggle for a life without pain!

A few months ago, doctors diagnosed her with nonspecific ulcerative colitis. Alina recently underwent tests, which showed the presence of inflammation. She has further tests and consultations with specialists ahead of her.

The woman has already gone through the most difficult stage of treatment, and her condition has stabilised. Now she has to take the vital medications Pentasa, Probiz Intensive, Salofalk and Betargin for six months. If the intestinal mucosa recovers, the stoma can be removed.

If you type ‘Pentasa for free’ into a search engine, you can read the text of a petition created by patients in 2024. In simple terms, the petition describes how the life of a person with IBD changes, how it deteriorates due to the removal of the stoma, and how often IBD leads to complications in the form of intestinal cancer.

The author proposes to include Pentasa and Salofalk in the ‘Affordable Medicines’ programme, noting that there are not many patients with IBD in the country and they should not burden the budget. However, the petition did not receive enough votes.

Every hryvnia you donate is a step towards stable remission and improving Alina's quality of life!

 

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