A ray of hope for Solomiya with Glass syndrome
A ray of hope for Solomiya with Glass syndrome
Completed

A ray of hope for Solomiya with Glass syndrome

The project is carried by
Started: 01.08.2024
Khmelnytskyi region
Completed
Totally raised
60800.0 UAH
Funded
100%
Total goal
60800.00 UAH

This little girl with the charming name Solomiya has had two rare diseases since birth – Glass syndrome and primary humoral immunodeficiency, which requires constant drips with immunoglobulin. Monthly tests, monitoring, and treatment. Solomiika has been living like this for 11 years. Her parents have been coping with the treatment all this time on their own, but with the outbreak of full-scale war, the situation has worsened, and the family no longer has enough money. And it is extremely necessary to maintain Solomiika's condition.  

After the first course of metameric treatment at the Institute of Pain Problems in Kyiv, the girl has made significant improvements in her development, and her parents and doctors have noticed very noticeable positive changes. But without our support, the parents are unable to pay for the next treatment, so they are begging for help from all concerned people!

Dear friends! We can definitely help Solomiya! Please join our project!

Full name: Stefanyshyna Solomiya, 16.04.2013
City: Yarmolyntsi, Khmelnytskyi region
Diagnosis: Atactic syndrome in a child with Glass syndrome, dyspraxia, cognitive impairment, motor and attention disorders, general developmental disorders in the form of expressive-receptive speech disorder, primary humoral immunodeficiency
ID: 9593
Supported
183
Середній донат
200 UAH
ТОП-донат
7750 UAH
Supported
Charity donation
01.10.2024 12:16
1703.08 UAH
Charity donation
29.09.2024 16:20
200.00 UAH
Charity donation
27.09.2024 14:05
2100.00 UAH
PUBLIC ORGANISATION "SYNERGY+"
26.09.2024 16:33
7750.00 UAH
Charity donation
26.09.2024 16:18
50.00 UAH
All donors

Thank you for your support!

Raised

Similar projects
A complicated course of the disease
Support
Health
A complicated course of the disease
Two years ago Mykyta was diagnosed with type 1 diabetes with ketoacidosis. From that moment on, the fami…
Polina: regular therapy – a path to growth
Support
Health
Polina: regular therapy – a path to growth
Five-year-old Polina is developing at her own pace due to a rare genetic mutation that affects brain dev…
Vital medicines are needed. 3
Support
Health
Vital medicines are needed. 3
For six years now, Inna has been living with epilepsy and constantly suffers from seizures. Her life tod…
Denуs's suffering can be alleviated. 3
Support
Health
Denуs's suffering can be alleviated. 3
At the age of 3, Denys was diagnosed with diabetes. The boy has now been living with this diagnosis for …
Show All