A ray of hope for Solomiya with Glass syndrome
A ray of hope for Solomiya with Glass syndrome
Completed

A ray of hope for Solomiya with Glass syndrome

The project is carried by
Started: 01.08.2024
Khmelnytskyi region
Completed
Totally raised
60800.0 UAH
Funded
100%
Total goal
60800.00 UAH

This little girl with the charming name Solomiya has had two rare diseases since birth – Glass syndrome and primary humoral immunodeficiency, which requires constant drips with immunoglobulin. Monthly tests, monitoring, and treatment. Solomiika has been living like this for 11 years. Her parents have been coping with the treatment all this time on their own, but with the outbreak of full-scale war, the situation has worsened, and the family no longer has enough money. And it is extremely necessary to maintain Solomiika's condition.  

After the first course of metameric treatment at the Institute of Pain Problems in Kyiv, the girl has made significant improvements in her development, and her parents and doctors have noticed very noticeable positive changes. But without our support, the parents are unable to pay for the next treatment, so they are begging for help from all concerned people!

Dear friends! We can definitely help Solomiya! Please join our project!

Full name: Stefanyshyna Solomiya, 16.04.2013
City: Yarmolyntsi, Khmelnytskyi region
Diagnosis: Atactic syndrome in a child with Glass syndrome, dyspraxia, cognitive impairment, motor and attention disorders, general developmental disorders in the form of expressive-receptive speech disorder, primary humoral immunodeficiency
ID: 9593
Supported
Charity donation
01.10.2024 12:16
1703.08 UAH
Charity donation
29.09.2024 16:20
200.00 UAH
Charity donation
27.09.2024 14:05
2100.00 UAH
PUBLIC ORGANISATION "SYNERGY+"
26.09.2024 16:33
7750.00 UAH
Charity donation
26.09.2024 16:18
50.00 UAH
All donors

Thank you for your support!

Raised

Similar projects
Living despite the disease
Support
Health
Living despite the disease
Nikita was diagnosed with diabetes when he was just five years old. Since then, his life has changed dra…
Helping children's intensive care centers to keep the stories going
Support
Health
Helping children's intensive care centers to keep the stories going
Raising UAH 2 800 000 for a modern endoscopic imaging system with a Fujifilm EB-530R bronchoscope, which…
A world of sounds for Sonia
Support
Health
A world of sounds for Sonia
Those who have been with us for a long time remember Sonia: seven years ago we bought her hearing aids a…
Power of good: opening new horizons for Tetyanka
Support
Health
Power of good: opening new horizons for Tetyanka
16-year-old Tetiana is a kind, bright girl with severe hypothyroidism, developmental delays, speech and …
Show All