A ray of hope for Solomiya with Glass syndrome
A ray of hope for Solomiya with Glass syndrome
Completed

A ray of hope for Solomiya with Glass syndrome

The project is carried by
Started: 01.08.2024
Khmelnytskyi region
Completed
Totally raised
60800.0 UAH
Funded
100%
Total goal
60800.00 UAH

This little girl with the charming name Solomiya has had two rare diseases since birth – Glass syndrome and primary humoral immunodeficiency, which requires constant drips with immunoglobulin. Monthly tests, monitoring, and treatment. Solomiika has been living like this for 11 years. Her parents have been coping with the treatment all this time on their own, but with the outbreak of full-scale war, the situation has worsened, and the family no longer has enough money. And it is extremely necessary to maintain Solomiika's condition.  

After the first course of metameric treatment at the Institute of Pain Problems in Kyiv, the girl has made significant improvements in her development, and her parents and doctors have noticed very noticeable positive changes. But without our support, the parents are unable to pay for the next treatment, so they are begging for help from all concerned people!

Dear friends! We can definitely help Solomiya! Please join our project!

Full name: Stefanyshyna Solomiya, 16.04.2013
City: Yarmolyntsi, Khmelnytskyi region
Diagnosis: Atactic syndrome in a child with Glass syndrome, dyspraxia, cognitive impairment, motor and attention disorders, general developmental disorders in the form of expressive-receptive speech disorder, primary humoral immunodeficiency
ID: 9593
Supported
Charity donation
01.10.2024 12:16
1703.08 UAH
Charity donation
29.09.2024 16:20
200.00 UAH
Charity donation
27.09.2024 14:05
2100.00 UAH
PUBLIC ORGANISATION "SYNERGY+"
26.09.2024 16:33
7750.00 UAH
Charity donation
26.09.2024 16:18
50.00 UAH
All donors

Thank you for your support!

Raised

Similar projects
I want to catch up with you! 4
Support
Health
I want to catch up with you! 4
Anna is an incredibly strong and persistent girl who has been fighting for the opportunity to live and d…
Save the father! 3
Support
Health
Save the father! 3
Seven years have passed since Lavrentiy, a young man, loving husband and father of two beautiful daughte…
Virtuoso dreams of living without pain
Support
Health
Virtuoso dreams of living without pain
Andrii has a rare genetic disease – Ehlers-Danlos syndrome, and his well-being is worsening every day. T…
Dania struggles with autism. 2
Support
Health
Dania struggles with autism. 2
This is not the first fundraiser we have organized for the child, so we are happy to hear about positive…
Show All