SMA, stop! 2

Charming Dasha in a beautiful dress on a wheelchair played Mary's role in the inclusive play of the ballet Nutcracker. Behind the scenes, there was a daily titanic work, orthopedic remedies, medications, injections, amino acids, all that holds back SMA – a difficult genetic progressive disease. It is impossible to cure but is possible maintenance of the body and desperate containment of the disease so that it does not progress quickly. This way of life of the child – incurable, expensive and lifelong. 

In March, UBB donors already helped Dasha with special nutrition and medical products for one course of treatment (previous project here). Family's gratitude has no limits. Mothe wrote touching words: "Only thanks to you, Dasha will be able to improve her health, become stronger and more enduring. I can not express in words those feelings that overwhelm me! When we saw how the raising funs is happening, I will say honestly, I had tears because there are indifferent, sensitive and kind people. Thanks for the good. God save Your Family, Your Health, Peace and Good".

And Dasha herself sent a letter: "Thanks for the medicine and my favorite Milk money for which was collected for me. Thanks to you, I have already begun treatment, I have different procedures, needles, injections and develop my joints. Very soon it will be much easier for me to walk. Thank you, everyone, for what you do for me and for other people who need your help. I am grateful to each of you. Without you, my parents cannot handle it by themselves".

The girl already understands everything and so it is even more terrible to observe how insidious illness each day subtracts her ability to move. Our goal is to resist the SMA as long as possible. We are raising funds for the next medical course of treatment. Keep Dasha in this fight and we'll see her on stage once more!

Name: Chumashvili Daria, 17.04.2010

City: Mariupol

Diagnosis: spinal muscular atrophy