Three severe diseases for one child. 4

"Is it possible to ask for help urgently? It's very hard again. The temperature is high, we can’t do anything at home - we need a hospital and an antibiotic intravenously. Urgently need", mom's voice in the phone is interrupted by emotion and it sounds very quiet, Mom knows that neither she nor the foundation has "extra" thirty thousand, that it is necessary to collect and wait ... and that every day of waiting for her lovely daughter is deadly dangerous.

Nastya is one of the most difficult of our wards, she is eaten by three serious diseases at once: cystic fibrosis, insulin-dependent diabetes, and cirrhosis of the liver. A whole family of infections is constantly living in the lungs, there is also resistance to treatment, which means that more and more expensive drugs and greater dosages are needed.

But behind all this is Nastya's life. Thanks to her own patients and her mother's dedication, Nastya met already the 18th spring. Do you remember what spring is at 17? Our Nastya can’t fully appreciate it yet – she has a high fever, lack of appetite and great weakness – not really to take a walk. The whole world is like in a fog. And the most important, what remains in it, is the hope. The hope for an ambulance, the hope that the medicines will help, the hope to feel better nevertheless.

The pulmonology of the Kiev Institute of Amosov is waiting for Nastya as soon as possible. Mom is ready to collect a suitcase and book tickets right now, but without money for medicines, it has no sense. Meronem is prescribed this time – as many as 66 vials of 1 g for 3 weeks of treatment. For the budget funds, this drug is not yet purchased. And, although Mom constantly applies for funding for Nastya's treatment, real assistance is very small and there is nothing to pay for in-patient care.

Name: Bondar Anastasiia, 13.11.2000

City: Mykolaiv

Diagnosis: cystic fibrosis with pancreatic insufficiency, severe course, chronic obstructive bronchitis, lung cystrophy, cirrhosis, portal hypertension, hypersplenism, coagulopathy, type 1 diabetes mellitus