News December 2025

November 22 was Emanuel Syndrome Awareness Day.
We would like to tell you a little more about Bilal, one of several children in Ukraine with this disease.

The boy cannot hear, cannot speak, cannot walk. His whole world is Maryam. She is not only a mother, but also a nurse, caregiver, and support for her son.

Thanks to her efforts, he learned to hold his head up, sit, and crawl. But children with this syndrome cannot roll over and walk, and congenital deafness prevents him from learning to speak. Bilal's development corresponds to a one-year-old.

At the age of nine months, Bilal and his mother moved to Australia for a year. There, the child fell into a coma due to anemia and nutritional deficiency. Doctors diagnosed Emanuel Syndrome. This rare disease is manifested by hearing impairment, lack of speech, muscle weakness, developmental delay, and the presence of a congenital heart defect.

Bilal was given a long-term special diet. The only formula that his body can digest is Resource Junior. Maryam feeds her son every 3 hours, and at night too.

Resource Junior is the only way for the boy to get the nutrients he needs, grow, and gain weight.