Resuscitation ward, an offer to sign a refusal, a shunt, a tracheostomy, 4 comas, many operations and a strong parental love that helps the girl live – this is the life story in one sentence... Alisa is a long-awaited child, her mother dreamed so much that she would take her by hand and show the whole world, but fate decided otherwise. Alisa is 11 years old and a continuous struggle for life happens all these 11 years.
Persistent rehabilitation gave results: at 1 year and 7 months, Alisa started walking. At the age of 2, she knew all the colors, letters, and numbers. Alisa managed to study and graduated from the 4th grade between operations and a long recovery. The girl didn't miss a single school year. She writes very carefully, despite the fact that her arms do not work like other children's do. She reads a lot and likes to put puzzles together.
Over the years, due to dangerous pneumonia, parents almost lost their daughter 4 times. Alisa stopped walking after comas, and scoliosis began to progress. Alisa underwent extremely complex operations on her skull and spine in Germany and Spain. In the future, a number of other operations are planned, after which the girl may be able to breathe and eat independently. But that's later. And now she urgently needs to gain weight with the help of Special Nutrition and purchase filters for tracheostomy, which protect the mucous membrane from irritation with dry air. The child suffers when she inhales and exhales without filters.
At night, Alisa is connected to the artificial lung ventilation device because she can't fully breathe on her own. Now when the threat of power outages is high in any place of our country, Alisa needs to have an electric generator at home. This is the only guarantee that the child will always have her medical equipment working.
The family that has already given up everything once in 2014, fleeing the war, is again afraid of its terrible consequences. Now the war has overtaken them again together with anxiety of whether it will be possible to provide the beloved daughter with everything necessary for life. We kindly ask you to support this family!
|Full name:||Isaieva Alisa, 10.03.2011|
|Diagnosis:||Craniostenosis (operated), hydrocephalus (operated, shunt), Arnold Chiari syndrome (operated), Cruzon's syndrome, scoliosis of the spine (operated), contracture of the knee and elbow joints, dysplasia of both hips, has a tracheostomy|