News April 2025

Andriy Mayorov is a virtuoso pianist. 

He recently won 3 music competitions. He took second place in one of them and first in the other two. We are always happy to see the achievements of our wards. Despite their diagnoses, they do not succumb to circumstances and move forward! 

Andriy has a rare genetic disease - Ehlers-Danlos syndrome, which is characterised by a collagen defect and metabolic disorders, leading to changes in connective tissue.

The metabolic disorder is manifested by the accumulation of ammonia, which affects brain cells. The boy also has an imbalance of enzymes. He regularly undergoes tests and takes medications.

Recently, Andriy visited a geneticist and an immunologist, as his health is rapidly deteriorating. New alarming symptoms have appeared: curvature of the jaw, teeth growing in two rows and spontaneously falling out, increased pain and numbness in the legs.

A thorough laboratory examination will help to exclude a number of genetic and immunological diseases. And if detected, it will help to correct their manifestations.

In addition to Andriy, his mother and older sister have disabilities in their family. Dear friends, let's help raise funds for Andriy to undergo all the necessary tests. Then doctors will get the necessary data to stabilise the child's condition!