Zakhar believes in good people

This wonderful baby's name is Zakhar, a mother calls him Zakharchik, let us tell you his sad story. Zakhar's mother was the happiest on his birthday, her dream came true and she has become a mother, she is the best in the whole world for Zakhar, she is very caring, loving, attentive, beautiful and kind. But lately, the best mom in the world has been constantly crying, Zakhar is still small, but he has been worried about her already. Mom thinks that Zakhar still does not understand important things, but he understands everything – his life is doomed, the baby has the terrible diagnosis of type 1 SMA.  

Children in Ukraine never lift their heads with such diagnosis, they never get up on their own, such children cannot eat normally, they need constant care and real resuscitation at home...

There are medicines in the world, are called Spinraza vaccine, they are very expensive and are not registered in Ukraine. Although Spinraza has been saving children in other countries for more than 3 years. In the clinic of Dr. Bersenev, the baby has the opportunity to undergo the course of necessary treatment: a neurologist injects nerve endings to stimulate muscles, and this family needs money for this course. Indeed, in this family grows a small fighter who believes in good people who are ready to help win this hard battle with SMA.

Zakharchik has no choice – only to win and believe in victory. The family asks each of you not to be indifferent, perhaps it is your help that will allow baby Zakhar to live. Children are our future and they must live!

Name: Lopatynskyi Zakhar, 16.06.2018

City: Kiev

Diagnosis: spinal muscular atrophy type 1 (Verding-Hoffmann)