To stop a rare disease!

Four years ago the Malyshko family applied to us. A calm, humble and thoughtful girl Lera was 15 years old at that time. Most part of her life the girl spent being surrounded by hospital walls. Her case is the rarest one – she suffers from hemophilia. In a case of such disease, blood doesnʼt clot that results in uncontrollable bleedings and threat to life. Commonly men suffer from hemophilia. And Lera has extremely rare "maiden" form ("deficit of the X factor"), she is the only patient with such diagnosis in Ukraine.

Every month for her life-sustaining Lera needs to take expensive medication Octaplex, in the amount of two ampoules, and the price of one ampoule is about 11,000 UAH.

Lera has serious problems with joints. The girl is forced to walk with a cane during the periods of the main disease complication. The situation can be corrected by the regular taking of medications. In autumn of 2014 a small, but a real miracle happened in girl’s life: a kind person gave Lera 100 (!) ampoules. Lera and her support group were extremely happy. But recently Lera has applied to us again – there was no Octaplex left. The girl graduated from school, entered a higher educational institution and makes plans for the future, and her main plan is to survive.

Lera is brought up in an incomplete family. Except her, there is one more mother’s dependent – her younger brother. The family has no possibility to pay 22,000 UAH as a minimum for the medications every month. Last time thanks to not indifferent inhabitants of the city of Odessa and the generous donor, it became possible to provide the girl with necessary medication for a long time. Now she grew older and funds collection will progress much more difficult. Public financing for Lera’s case is not provided.

We are begging all not indifferent people to answer our pleas for help and give Valeriia a chance for the normal future, the age of 19 is only a beginning of the most important things, so there is a strong wish that the congenital disease will not break the girl’s destiny... Give Lera life. In such a case, things are actually like this - survival directly depends on the availability of money for the timely purchase of medication!

Name: Malyshko Valeriia, 13.04.1998

City: Artsyz, Odessa region

Diagnosis: deficit of the X factor, Stuart-Prauer disease