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CF "Orphanni Synytsi"
Total projects
4
Totally raised
"Orphanni Synytsi";is a charity fund created to help patients with rare (orphan) diseases when they are left alone with difficult diagnoses. It was founded by public activists;– parents of children with orphan diseases, who have long been fighting at the state level for the rights and full lives of their children and all orphan patients in Ukraine.
- About the operator
- Projects4
- News16
23.12.2021 18:17
2 children with cystic fibrosis received inhalers
CF "Orphanni Synytsi"
Dear friends! we have good news! Two inhalers were donated recently by our Foundation for children with a rare disease cystic fibrosis. This became possible thanks to a part of the funds raised on&nb…
16.11.2021 16:09
3 donees received concentrators
CF "Orphanni Synytsi"
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At the beginning of November, our Foundation purchased vital medical equipment for three donees with pulmonary hypertension (on charitable contributions received from other sources). Oxyge…
22.09.2021 15:39
Our Foundation provided the 1st inhaler
CF "Orphanni Synytsi"
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For the treatment of cystic fibrosis, 14-year-old Kristina from Zakarpattya region needs to do 5 inhalations with medicines every day.
Without inhalations - the threat of suffocating, pneumonia and hospital…
10.09.2021 17:51
6 детей получили портативные концентраторы кислорода
CF "Orphanni Synytsi"
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We have good news! Our project was supported by the Non-Governmental Organization "Rare Diseases of Ukraine", which helped to purchase and transfer 6 portable oxygen concentrators for the donees…
05.08.2021 12:36
Більше інформації щодо переданого концентратора
CF "Orphanni Synytsi"
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Більше інформації щодо переданого портативного концентратора. Декілька днів тому до Фонду звернулась мама 25-річного Дениса з м.Хмельницький, якого через раптове загострення рідкісної хвороби муковісцидоз треба бул…