CF "Orphanni Synytsi"
Total projects
4
Totally raised
"Orphanni Synytsi";is a charity fund created to help patients with rare (orphan) diseases when they are left alone with difficult diagnoses. It was founded by public activists;– parents of children with orphan diseases, who have long been fighting at the state level for the rights and full lives of their children and all orphan patients in Ukraine.
- About the operator
- Projects4
- News16
23.12.2021 18:17
2 children with cystic fibrosis received inhalers
CF "Orphanni Synytsi"
Dear friends! we have good news! Two inhalers were donated recently by our Foundation for children with a rare disease cystic fibrosis. This became possible thanks to a part of the funds raised on&nb…
16.11.2021 16:09
3 donees received concentrators
CF "Orphanni Synytsi"
At the beginning of November, our Foundation purchased vital medical equipment for three donees with pulmonary hypertension (on charitable contributions received from other sources). Oxyge…
22.09.2021 15:39
Our Foundation provided the 1st inhaler
CF "Orphanni Synytsi"
For the treatment of cystic fibrosis, 14-year-old Kristina from Zakarpattya region needs to do 5 inhalations with medicines every day.
Without inhalations - the threat of suffocating, pneumonia and hospital…
10.09.2021 17:51
6 детей получили портативные концентраторы кислорода
CF "Orphanni Synytsi"
We have good news! Our project was supported by the Non-Governmental Organization "Rare Diseases of Ukraine", which helped to purchase and transfer 6 portable oxygen concentrators for the donees…
05.08.2021 12:36
Більше інформації щодо переданого концентратора
CF "Orphanni Synytsi"
Більше інформації щодо переданого портативного концентратора. Декілька днів тому до Фонду звернулась мама 25-річного Дениса з м.Хмельницький, якого через раптове загострення рідкісної хвороби муковісцидоз треба бул…
