10 years of continuous treatment
10 years of continuous treatment
Completed

10 years of continuous treatment

The project is carried by
Started: 10.11.2022
Zhytomyr region
Completed
Totally raised
43000.0 UAH
Funded
100%
Total goal
43000.00 UAH

Yaroslav is already 10 years old and has been fighting a complex orphan genetic disease all his life. Tuberous sclerosis, or Bourneville-Pringle disease, is a hereditary genetic disease in which tumors or hamartomas form in many organs and systems of the body. These tumors are benign, but with multiple locations of tumors or their intensive growth, they can disrupt the functions of various organs.

Tumors in tuberous sclerosis affect almost all organs – this includes damage to the central nervous system, kidneys, heart, skin, organs of the digestive system, etc. With damage to the brain and central nervous system, patients may experience convulsions, as well as delayed mental and mental development.

Unfortunately, Yaroslav has a complicated course of this disease. There are tumors in the kidneys, heart and brain, and as a result, the boy is constantly accompanied by seizures and convulsions. As a result, the child needs constant treatment and examination. This includes an MRI of the brain, neurosurgeon consultations, examination of the kidneys, heart, and daytime sleep monitoring. It is also necessary to take expensive anticonvulsant drugs that prevent attacks. Medical expenses have completely exhausted the family budget of the Misko family, so our family is asking for help to purchase vital medicines for their son.

Full name: Yaroslav Mysko, 05.08.2012
City: Suyemtsi village, Zhytomyr region
Diagnosis: Tuberous sclerosis
ID: 8372
Supported
Charity donation
14.11.2022 23:44
4553.00 UAH
Charity donation
14.11.2022 20:09
4000.00 UAH
Charity donation
14.11.2022 19:22
100.00 UAH
Charity donation
14.11.2022 19:12
20.00 UAH
Charity donation
14.11.2022 16:20
100.00 UAH
All donors

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the project is completed.

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