Adeline loses the ability to breathe

The absence of the gene endangers the life of little Adeline. When she was 3 months old, the girl was diagnosed with a disease that she would not be able to overcome without expensive treatment. Every day, Adeline and her parents do everything possible to get closer to recovery, but, unfortunately, this is not enough.

The first months after birth, Adeline developed like an ordinary healthy child. But later, the parents noticed that their daughter was not holding her head, she stopped lifting her legs up. Having applied to the Kherson regional children's hospital, the girl underwent a full examination - everything was normal. Only the genetic test showed the absence of the gene for the copies of SMN1. As a result, the diagnosis was type 1 SMA (spinal muscular atrophy).

This disease makes it impossible to move, eat, breathe. Without treatment, most of the children do not even live to be two years old.

Adeline is undergoing supportive therapy and rehabilitation at the Olinek Intensive Care Center (Warsaw), at the INFANT Medical Center in Radom - using the Bobat method. And also in the clinic of physiotherapy "Manus Medica" (Warsaw) - using the Vojt method. Also, every day the girl is given massages and she does gymnastics at home.

Unfortunately, despite daily rehabilitation, Adelinka is losing strength. In order to be stronger, in order to grow, to gain weight, the girl must breathe fully, but this is not yet possible, since the muscles of the chest are weak. Adeline needs an emergency lung ventilation device (ALV).

Adelinka is a very smart and brave girl. She does not differ in intelligence from her peers, only she lacks strength in the muscles. Her parents believe that she will grow up to be a future scientist, singer or artist.

Adelina's family appeals to all caring people who can help raise funds for ALV. Any financial support is of great importance to them! Help Adeline overcome her illness