The struggle for Demir's life

"Do not allow such a thought that God will show us disasters. The life of the human term is short. There is no time for defeat..."

It was such words of Lina Kostenko that Tatiana's life became the motto of her family, and her only son came to her single son and changed their entire lives. The disease has changed priorities and values, changed us. And when the war began, Tatiana was more afraid to get the medicine, not the war itself. He says that moms of such children will understand her. After all, the passage of one dose of the drug causes the risk of epileptic attack, possibly status rather than taking medication – a direct threat to the child's life.

Families live in the Kiev region, in the town of Boguslav. They are treated at the boyar children's hospital. There they are more time than at home, unfortunately. Damira diagnosis – G 40.3 Idiopathic epilepsy, pharmacorean, complex partial seizures. These are short -term attacks day and night, up to 40 times a day. Mom is unbearably difficult and painful for the boy.

Demir was born healthy as everyone, including doctors, thought. It grew and developed, perhaps a little lagging behind in his peers, but it is individual, as is commonly considered. The only thing that was very worried was the pain in the tummy, the irritated gastrointestinal tract. What was very tormented by the child and the whole family, because treatment in this area was only short-term. And even Demir had increased nervousness.

And at 5.5 years the first attack occurred, followed by a diagnostic sentence...

Demir is now 6.5. For the whole year of treatment there were many injections and drips, changes in therapy, combinations of drugs, tears, anxiety, despair, despair. A thousand times Tatiana fell into the abyss of hopelessness and a thousand one rose. And with her lifted her sick baby.

Demir preserved intelligence, he is creative, very well draws and molds. And yet, he loves his mother and believes... And when he looks so childish in her eyes-mom finds inner strength somewhere to fight for the baby, for their family, for the right to happiness together. Save what is. So they learned to enjoy every moment and smile despite everything and contrary to all the troubles.

Tatiana was able to work without working and should ask for outside help. After all, she lacks resources, moral and material to fight further. In her plans, it is a genetic analysis to find out the cause, and possibly change the course of treatment to improve the health of the child. But because of his financial inaccessibility to our family, this is not now impossible. The main thing now is to have a medicine. The child lives with them!