I am the Butterfly! 2

Little Bogdan is 8 months old. From birth, the baby suffers from severe pain from the wounds that form on his body. The boy has bullous epidermolysis, he is a butterfly child. His skin is too thin and vulnerable to sustain the onslaught of the environment.

Pregnancy proceeded well, everyone was sure that a healthy child would be born. But when Bogdan was born, doctors noticed wound marks on his arms. This was the first bell for a detailed examination of the child. Bogdan is sent to the Poltava clinic, where they establish a diagnosis-verdict. Bullous epidermolysis. The disease is that on the body appear bubbles, which turn into wounds, constantly bleed. So it happened with Bogdan – his body was covered by 90% Bulls, which turned into a solid wound on the child. The pain was so strong that the small heart of the baby could not stand it and had to be transferred to the intensive care unit. Here the doctors fought for the life of the boy for a month. The situation became more complicated when Bogdan fell ill with sepsis and pneumonia. However, the baby survived.

Bogdanchik is a very cheerful child, despite the illness. When a boy sees new things, he discovers his interest in laughter. He loves to play with his favorite rattle: she is so much fun in his hands! And what a delicious it is! The boy also likes to sit and play objects that are very rustling, and when you call him "Bodia," he says in response: "Bo!". The boy speaks very much in his own incomprehensible language. Now he already has 12 teeth, which bite very hard!

Unfortunately, the diagnosis of Bogdanchik is incurable. He needs daily dressings. Normal bandages do not fit, as they stick to the wounds, and when it's time to change them, you have to tear them from the skin and cause even more pain.

Earlier on the UBB we already collected funds for Bogdan. You can revise the project under the link.

Name: Khliust Bogdan, 08.07.2017

City: Onishky village, Poltava region

Diagnosis: dystrophic generalized bullous epidermolysis, the limiting form