"Baby boxes" for special babies

He was born – your baby – tiny and helpless, he is fully dependent on you and you will do everything to protect him. Perhaps you worry a little that it won't be easy, but you think that you will cope… However, that moment when parents hear that their child has a serious disease, the sky falls to their heads. It takes some time for them to adust to the new reality. But any second without treatment is deadly dangerous for their baby. We want to prepare special "baby boxes" with all things necessary for the treatment of a child with cystic fibrosis from the first months of his life. 

Step by step the parents will cope with the situation. They will set a new life so that all the necessary procedures fit in the schedule of the baby's day, write all the letters and statements to get all possible help from the state, find organizations where they can get other help (there are not many of such organizations, but they still exist). But all this will take place later.

Now, this moment when parents first hear the words "cystic fibrosis" and google it – they will get lost: there is a lot of information, the therapy looks complicated and numbers with four zeros are overwhelming. We want such families could receive support at this difficult time: the equipment necessary for daily treatment from the time the diagnosis has been set, the supply of special high-calorie nourishment and instructions on the further steps and specifics of therapy. The baby will begin to get the necessary treatment faster, and parents will recover and orient themselves in a new reality easier with this support.

We have seen how much it helps. Thus, we want such support to become systematic. Now we are asking for your help to pack the first five special "baby-boxes" for children who will come to life in 2019 and hear the word: cystic fibrosis. Let their life begin not with despair but with care!