One more girl but a unique one

These days little Eva enjoys her summer: she's running around the house, riding her bike. At first glance one wouldn't even notice this spirited girl is seriously ill. However, parents are looking at this activity of hers with great pain. Because they know the dreaded enemy won't let their live for long. This enemy is Kostman's syndrome. This disease deceitfully destroys the immunity completely, people having it don't live for more than a year. The only salvation is the bone marrow transplantation from the unrelated donor. But she could be operated only abroad for 115 000 EUR.

Even that small amount of funds that family managed to earn and raise is spent on the current treatment and medications. Lack of immunity leads to a constant infectious complications – the girl has suffered from pneumonia, bronchitis, suppurative media otitis, unreasonable fever. One week Eva plays and jumps, and then two or three weeks she spends in a hospital.

The parents found out about the illness suddenly: the girl just had severe fever (over forty temperature) for no reason, the child became yellow. The parents appealed to the doctor who first said it was leukemia. Scary diagnosis was not confirmed. It took 4 months to establish a true diagnosis. But it was no less terrible – Kostman's syndrome. This disease is extremely rare – this syndrome is found in one of the 5 million births. Doctors say that the treatment with expensive drugs won't make an effect, and the disease will finally lead to a fatal end. The only way is bone marrow transplantation from an unrelated donor.

As everyone already knows, these kinds of surgeries are not possible in Ukraine. The hospital in Verona is ready to take Eva for treatment, but the cost of the treatment there is 115 000 EUR. Parents are in despair – they don't have the money to collect ever. They ask all concerned to help. They have managed to collect more than 15 thousand USD, but the true salvation is still too far.

Lately there was payment transferred by the Ministry of Health of Ukraine to the clinic of Verona for Diana Choban's treatment (project "One in a Million"). This means that the funds collected for her on UBB and paid to the Verona clinic can be transferred to Eva Petruk's treatment without any bureaucratic obstacles, and it's already possible to start typing. At this time, while the donor will be found for the girl, we'll still continue to collect on UBB the rest of the amount needed to fully treat the girl. Let the world give this girl a chance for life, enjoyment and happiness!

Name: Eva V. Petruk, born 14/06/2010

Location: Ivano-Frankivsk region

Diagnosis: Kostman's disease (impression of immunity. This causes that the body "catches" any infection and doesn't fight against it. This disease is extremely rare – this syndrome is found in one in 5 million births)