In order to live a small Toma needs to constantly take medication!
Tomochka was born half years ago in a family of engineers from the Bila Tserkva. This couple had not the children for a long time. But a miracle was happened - when Sergey and Oksana have gathered to adopt a child from the orphanage, it turned out that his wife is pregnant. So was born the eldest daughter Olga, Toma is the second child in the family.
Infections chased the girl from the maternity hospital: the child inflamed lymph nodes, persistent otitis, acute respiratory infections, fever. In nine months, Toma, weakened by constant illnesses, was in intensive care. When in February last year she returned home after a long treatment, all believed that this hospital routine is behind.
Toma grew up, she began to walk and walking with her mother. But once on the playground she banging by lip and history repeated itself. This time the doctors advised to her mother to get tested for the presence of the child granulomatous disease. Unfortunately, fears confirmed.
"This disease is characterized by the inability of cells to absorb and digest bacteria", says Anna Hilfanova, physician of Toma. "A child whose has granulomatous disease is not protected from bacteria and fungi. So for her the campaign in a park or a trip to the village may end severe illness or even death. This is not dangerous for children to communicate with their peers and other people, but terribly contact with the environment".
Granulomatous disease belongs to the so-called primary immunodeficiencies that Ukrainian doctors diagnose started recently. Today registered 700 cases for the whole Ukraine. This genetic disease have no relation to AIDS. To survive Toma Lopatina needs lifelong treatment with antibiotics and antifungal drugs or bone marrow transplantation.
"Now the state of this little girl is stable", said doctor Anna Hilfanova. "If she would regularly take medication and observed by a doctor, we can predict that she will be able to visit the child collective and can possibility to fully developed. These kids are constantly in need of medical and social support and require large financial costs. But now the state is not covered all of these needs".
Parent Tamara designs refineries and mother to the maternity leave the factory developed tires "Rosava". However, family income engineers with little White Church. They now live on a salary of Sergei. A little Tom is already in dire need of antifungal drugs "Orungal" three package which cost 8658 USD. Let's help the girl survive!
The father of Tamara designs sugar-houses and mother till went away in a maternity leave developed tires at the plant of "Rosava". However, the profits of family of engineers are small. Now they live on a salary of Sergei. But little Toma is already in dire need of antifungal drugs "Orungal" in quantity of three package for total amount of UAH 8 658,00. Let's help the girl survive!
Name: Tamara Sergiivna Lopatina, 05.05.2015
City: Bila Tserkva
Diagnosis: primary immunodeficiency, chronic granulomatous disease
ID: | 2684 |
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