Angelina is a rare disease. 7

  The story of the girl with mischievous eyes is well known to UBB donors. From childhood, Anhelina and her mother practically "lived" in hospitals. Viruses, infections, pneumonia deprived the girl of a full life. And only the diagnosis established by immunologists clarified the situation – Anhelina has primary immunodeficiency. This is a congenital disease that completely deprives the child of natural immunity.

Recently, Anhelina has been sick for a very long time. For almost three months, local doctors could not cure otitis media. And then mom asked to send them with her daughter to Kiev. "And there the miracle doctors were cured in three days!", – the girl’s mother shares the news. In Kiev, Anhelina again passed all the necessary examinations. Doctors note a significant positive trend. Elastography of the liver showing normal results (from stage 4 stiffness went down to 2! "This is a very good result!, – says the mother of the child. Not great, but still! The" window "on the heart closed. It was a little open".

The girl was deregistered by a cardiologist. An ultrasound scan also showed improvement. The only thing is that the indicators of sirolimus fell. Anhelina's speech has improved significantly and classes with a speech therapist will soon end!

But in general, Anhelina, as always, is groovy and cheerful! She plays with his sister, rides a bicycle. Thanks to the repeated help of UBB donors, Angelina now lives like an ordinary child. And for mom makes various bouquets. "Anhelisha loves to draw," – writes the child’s mother, – but I couldn’t even imagine that she could do that!"

The girl participates in a drawing contest for children with PID on the topic "Beloved Nurse" and drew Dr. Anna Mikhailovna. The drawing turned out well, not much different from the original! We hope that Anhelina will be among the winners of the contest!

And soon she will again begin to administer immunoglobulin, which allows the girl to forget about her constant illnesses for a while. Anhelina needs the drug Bioven-mono 6 fl which cost 14 208 UAH.
Father works in two jobs, trying to provide the family with the necessities. Anhelina has two sisters: twin Melania and older Valeria. Unfortunately, there is not enough money for everything. After all, only the treatment of Anhelina requires significant amounts. Parents of the girl ask for help.

Earlier on UBB we already collected money Angelina. View the previous project you can by the link.

Name: Onopriienko Anhelina , born 09/11/2012

Сity: Dergachi, Kharkiv region

Diagnosis: Primary immunodeficiency: activation syndrome of RI3K-delta type 1 (APDS1) due to heterozygous gof mutation in the PIK3CD gene (generalized lymphadenopathy, hepatosplenomegaly, severe hyperplasia of the lymphocyte ring with obstructive apnea syndrome, nodular hyperplasia of the intestine, immune cytopenia). Bilateral, chronic purulent middle otitis media. Chronic hepatitis C, high replicative activity, genotype 1b. Viral hepatitis B: Inactive carrier of HBsAg. Syndrome of biliary sweat. Carious lesions of the teeth.