Unique, but not conquered by the disease. 2

Bilal is the only child in Ukraine with Emanuel syndrome, which is manifested by hearing impairment, lack of speech, muscle weakness, developmental delay, and heart disease. At the age of 1.5 years, the boy suffered a coma due to nutrient deficiency and anemia. The gastroenterologist prescribed the Resource Junior mixture, since Bilal's body absorbs only it. To provide the baby with this formula for 6 months, we are launching a fundraiser.

Doctors immediately drew attention to the newborn's low weight, muscle hypotonia, lack of sucking reflex, and indigestion. Therefore, the child was transferred to the intensive care unit of the Ternopil Regional Hospital.

Mаriam managed to teach her son to suck and swallow in 10 days, which eliminated the need to use a tube for feeding.

When Bilal was 9 months old, he and his mother went to Australia for a year, where he was diagnosed with this rare disease. Mom taught her son to hold his head, sit and crawl. But children with this syndrome do not know how to turn over and walk. And congenital deafness does not allow Bilal to learn to speak.

In April, the boy contracted Covid for the third time, which was complicated by pneumonia. The course of taking antibiotics had a negative effect on his already weak digestive system. Bilal can cry all day from a stomach ache. Constantly he takes a number of drugs to alleviate the condition.

A gastroenterologist selected a special diet for the boy, Resource Junior. Mаriam feeds her son from a bottle 6 times a day, spending one jar of formula worth UAH 690 per day. This mixture costs UAH 20,700 per month.

Maryam is asking for help from caring people to collect money so that Bilal can have a supply of Resource Junior formula for six months. Please support the boy and his mother!