Angelina has a rare disease. 3

Angelok, so the mother gently calls Angelina. She has a twin sister Melania and an older sister Valeria. In November, the youngest girls Angelina and Melania turned 6 years old. Everything was nothing if Angelina was not sick. From the age of 2.5 years, this baby practically lived with her mother in the hospital. Analyzes, surveys, consultations... But the doctors did not succeed in putting the exact diagnosis. And only in June of last year, in the immunological center in Kiev, was it put to establish the cause of Angelina’s diseases. The girl has a congenital genetic disease: primary immunodeficiency, which deprives the body of natural protection. 

Angelina was prescribed a course of treatment that will maintain the girl’s health condition. Thanks to the support of caring people during the two stages of fundraisings, Angelina received the drug Bioven-mono necessary for treatment, for which her parents are sincerely grateful to UBB donors.

Thanks to this medication, Angelina started treatment. Every day she becomes more and more active! This year, Angelina and Melania will go to the first class! Their mother to share joy: "This is a great happiness for her and for us, parents! We could not even imagine that they would study together, as the doctors had previously talked about Angelina’s training at home. And now, by positive results, Angelina is allowed to attend both the kindergarten and the school. Now we are looking forward to the graduation ceremony in the kindergarten, and... we will start a different, and most importantly, unlimited, life, like all kids!"ю

Unfortunately, gymnastics had to be left until spring. The girl lives far away and has to go to classes only on foot. Now Angelina needs the drug Bioven-Mono (5 bottles). The total cost of the drug is 14 081 UAH. This amount is large for the girl's parents. To the last, they independently coped with the expenses connected with the treatment of the daughter. The father of Angelina, though he works in two jobs, but doesn’t have enough money for everything.

Now Angelina needs our help again! Please support her!

We used to raise money for Angelina’s treatment at UBB. View previous projects you can by the link.

Name: Onoprienko Angelina, 09.11.2012

City: Dergachi, Kharkiv region

Diagnosis: primary immunodeficiency: activation syndrome of RI3K-delta type 1 (APDS1) due to heterozygous gof mutation in the PIK3CD gene (generalized lymphadenopathy, hepatosplenomegaly, severe hyperplasia of the lymphocyte ring with obstructive apnea syndrome, nodular hyperplasia of the intestine, immune cytopenia). Bilateral, chronic purulent middle otitis media. Chronic hepatitis C, high replicative activity, genotype 1b. Viral hepatitis B: Inactive carrier of HBsAg. Syndrome of biliary sweat. Carious lesions of the teeth.