Virtuoso dreams of living without pain
Virtuoso dreams of living without pain
Active

Virtuoso dreams of living without pain

The project is carried by
Started: 23.01.2025
Dnipro region
Active
Still needed
158865.00 UAH
Funded
28%
Total goal
221330.00 UAH

Andrii has a rare genetic disease – Ehlers-Danlos syndrome, and his well-being is worsening every day. The geneticist and immunologist are sure: there is a hidden pathology. The boy needs to undergo an in-depth examination at the Vitalab laboratory center.

At 34 weeks of pregnancy, Olha's water broke, she urgently underwent surgery. Due to the tight umbilical cord entanglement, the child suffered oxygen starvation. And due to hemorrhage in the baby's brain, a cyst formed.

Andrii lagged behind in development, so his mother turned to a neurologist. The child was diagnosed with atypical autism. Later, Olha noticed alarming symptoms in her son: frequent bleeding, excessive mobility and soreness of the joints, muscle weakness, emotional instability, loss of existing skills.

It turned out that he has a rare genetic disease – Ehlers-Danlos syndrome, which is characterized by a collagen defect and metabolic disorders, which leads to changes in connective tissue. Metabolic disorders are manifested by the accumulation of ammonia, which affects brain cells. Andrii also has an enzyme imbalance. He regularly takes tests and takes medications. Despite this, the boy is an inexhaustible optimist and musician.

Recently, the boy was seen by a geneticist and immunologist, as his health is rapidly deteriorating. New alarming symptoms have appeared: a crooked jaw, teeth grow in two rows and spontaneously fall out, pain and numbness in his legs are increasing.

In addition, Andrii is constantly sick with respiratory diseases. Now he has a sore throat and a runny nose, although he recently completed a course of antibiotic therapy.

A thorough laboratory examination will allow you to exclude a number of genetic and immunological diseases. And if detected, it will help correct their manifestations.

In addition to Andrii, his mother and older sister have disabilities in their family. Dear friends, let's help raise the necessary amount for Andrii to undergo all the necessary tests. Then doctors will get the necessary data to stabilize the child's condition!

Full name: Andrii Maiorov, 09.09.2011
City: Kamianske, Dnipro region
Diagnosis: Ehlers-Danlos syndrome, autism, hemorrhagic vasculitis, mitochondrial dysfunction
ID: 9935

Your help is needed more than ever. Support the project to add some goodness to this world!

Support

Supported
Charity donation
10.05.2025 12:29
1000.00 UAH
Charity donation
07.05.2025 05:34
1000.00 UAH
Charity donation
05.05.2025 22:28
50.00 UAH
Charity donation
05.05.2025 22:28
5.00 UAH
Charity donation
22.04.2025 19:10
2200.00 UAH
All donors
Similar projects
Help Veronika speak her future!
Support
Health
Help Veronika speak her future!
Veronika was born with severe central nervous system damage and has been struggling with cerebral palsy …
Living despite the illness
Support
Health
Living despite the illness
Since kindergarten, Viktoria has been a very creative child. Not a single holiday was held without her p…
Between war and childhood: the history of Andriyka
Support
Health
Between war and childhood: the history of Andriyka
Andriyko is a child with autism who needs ongoing rehabilitation. After the war began, he experienced re…
Maksym continues to fight. 2
Support
Health
Maksym continues to fight. 2
10-year-old Maksym continues to fight for his health, as he has cerebral palsy, speech impairment, and d…
Show All