Iron captivity. 2

Andrii Bevza, who weighs 22 kg at 11 years old due to a rare disease, needs help again. The boy has Hallervorden-Spatz disease: iron is deposited in the basal cells of the brain. Every year it worsens the condition of the central nervous system. In addition, protein-energy deficiency has developed: food is poorly digested, Andrii has a serious weight deficit. Special food and hygiene products for him cost UAH 23,000 per month.

Aliona's pregnancy went well, but at some point the devices recorded the baby's oxygen starvation. The baby was born by caesarean section, but developed normally.

Perhaps, this is the most painful: when a seemingly healthy, active child begins to lose skills before parents’ eyes. At the age of three, Andrii stopped taking steps with his right leg, as if the muscles in it had weakened. Little by little, the boy stopped walking on his own, and at the age of 5 he was unable to walk even with support. In the next three years, Andrii stopped talking, lost his chewing and swallowing skills. The boy is fed through a tube.

Andrii spends all his time in bed. He tries to make it easier for his mother to take care of himself by getting up and coming back when needed. Andrii is supported by a faithful friend, the cat Motia. He always sleeps nearby, licks boy’s his face and hands.

For several years, attempts to find the cause of the disease were unsuccessful. After all, in the Kyiv Institute of Neurosurgery Andrii was diagnosed with Hallervorden-Spatz disease, a hereditary degenerative disease of the nervous system. Andrii is the only diagnose with this disease in the Dnipropetrovsk region.

Protein-energy deficiency further complicated the situation: at the age of 11, the child weighs only 22 kg. The doctor prescribed to use special food on a permanent basis. 30 cans of Resource Junior nutrition cost UAH 19,500 per month. About UAH 3,500 goes to hygiene products.

Aliona takes care of her son herself: the father does not take any part in the child's life, only occasionally calls to find out about his health. Aliona cannot afford to pay for special food and hygiene products, so she again turned to us for help. Let's provide Andrii with everything he needs!