A girl with a rare disease needs help
A girl with a rare disease needs help
Completed

A girl with a rare disease needs help

The project is carried by
Started: 17.01.2022
Zaporizhia region
Completed
Total collected
32500.0 UAH
Funded in percents
100%
Needs
32500.00 UAH
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"Masha was born a healthy girl, grew up the same as all children her age, began to go to kindergarten," recalls her mother Galina Shekhovtseva. "She was a very active child: she ran, jumped, danced, sang her favorite poems, loved to listen to fairy tales." But when Masha was two years old, trouble happened. The girl began to cry often at night, stopped talking, began to tear books and bite herself, shout and beat, then stopped doing everything and everyone's attention. In short, the girl began to lose communication skills.

From this began her wanderings in hospitals. At the age of 4, Masha was previously diagnosed with Rett syndrome, and later confirmed it after genetic testing. Unfortunately, this genetic disease is not curable, but with good care, rehabilitation and with good and proper treatment of concomitant diagnoses, you can live to old age and return all the acquired skills.

Recently, the girl began to get sick quite often, from 2017-2021 she suffered from numerous pneumonias, sepsis, COVID-19, and numerous epileptic seizures. Miraculously survived!

In Kyiv, an immunologist prescribed Masha treatment with antiviral drugs and immunoglobulin replacement therapy, which now costs 130,000 UAH per month. Treatment should not be interrupted due to virus resistance to drugs, recurrent outbreaks of sepsis, pneumonia and epi-attacks.

"Unfortunately, we do not have such huge funds to undergo all the treatment," Masha's parents admit. "And we're working hard to do that, but that's not enough". The parents spend all the money earned on the girl's treatment. Therefore, they turn to everyone who cares for help.

On dobro.ua we collect part of the required amount for medicines for Masha.

Help Mary to overcome the disease! Make her world bright and colorful, without hospital beds and resuscitation! She is so eager to live!

Full name: Shekhovtseva Maria, 29.06.2003
City: Zaporizhia region, Berdyansk
Diagnosis: Rett syndrome. Primary immunodeficiency
ID: 7799
Supported
Anna Derii
22.07.2022 20:32
1270.00 UAH
Аня Кутова
21.07.2022 16:23
100.00 UAH
Charlie Chaplin
21.07.2022 12:42
30.00 UAH
Charity donation
21.07.2022 11:42
20.00 UAH
Назарій Кобильник
21.07.2022 08:28
150.00 UAH
All donors

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Collected

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