Help little Bohdan! 4
Help little Bohdan! 4
Active

Help little Bohdan! 4

The project is carried by
Started: 28.08.2026
Kyiv region
Active
Still needed
36300.00 UAH
Funded
0%
Total goal
36300.00 UAH

One in 40,000 – that is the probability of being born with Smith-Lemli-Opitz syndrome. This is a rare genetic disorder in which a child's body cannot properly synthesize cholesterol. Bogdanchyk Aldabaiev is that one child.

Due to health problems after birth, doctors suggested that Bohdan might have Down syndrome – but tests did not confirm this. The question remained open, as the boy did not feel hunger, suckled weakly, and was falling behind in development. Only when Bohdan turned one year old and he and his mother traveled to Turkey did local doctors finally establish this rare diagnosis.

From that moment treatment began: diet, therapy, rehabilitation. The boy currently has delayed psycho-speech development, limited understanding of spoken language, hyperactivity, and does not yet speak. But rehabilitation is producing noticeable results: Bohdan's walking, attention, concentration, and fine motor skills have improved significantly, and new sounds have appeared.

Regular comprehensive rehabilitation is recommended for the boy – but a lack of funds stands in the way. Please support Bogdanchyk, who is so very much in need of your help.

Full name: Bohdan Aldabaiev, 14.06.2018
City: Irpin, Kyiv region
Diagnosis: Smith-Lamley-Opitz syndrome. Generalized muscle hypotension. Delayed statokinetic development. F80.1. Underdevelopment of expressive and receptive speech. Mild cognitive deficiency. Dysfunction of emotional and volitional and communicative spheres
ID: 11320
Make a good first!

Your help is needed more than ever. Support the project to add some goodness to this world!

Support

Similar projects
Help Andriy take a step towards a better life!
Support
Health
Help Andriy take a step towards a better life!
Andrii Mladinov is a kind and sincere boy who is only seven years old, but he is already going through a…
Her childhood depends on timely support
Support
Health
Her childhood depends on timely support
Polina has childhood autism. She needs regular rehabilitation courses to help her develop and adapt to t…
Solomiia's dream is stronger than the disease
Support
Health
Solomiia's dream is stronger than the disease
Solomiia was diagnosed with type 1 diabetes at the age of nine. She was hospitalized after a sudden and …
A girl who knows how to be a true friend!2
Support
Health
A girl who knows how to be a true friend!2
Olia is a kind and sincere girl who never loses her smile despite challenges. She loves painting, commun…
Show All