Yura needs our help

Yura Petrenko is 10 years old and all these years he lives with a chronic orphan disease of primary immunodeficiency. His mother Victoria is 42 years old and she herself brings up two sons 10 and 14 years old. They live in the city of Dnipro, the youngest son Jura from birth is very often ill with infectious diseases – purulent sinusitis, acute bronchitis, and pneumonia. All these diseases are treated only with antibiotics, and after one of pneumonia, when antibiotics no longer acted on Yura, his mother took him from the hospital and took him to Kyiv for examination. First, to "OKHMATDYT", and then to the Department of Immunology, where Yura was diagnosed with primary immunodeficiency. It means that the child has very weak immunity and is doomed to support the body with immunoglobulins and antibiotics. 

Yura is a very kind and active boy, studying at school, he likes lessons in labor, singing, loves to read, and goes to the chess section. The mother tries to provide him with all the necessary medicines and, at the slightest malfunction, seeks out specialists for him who could systematically consider his health problems and prescribe the treatment without further suppressing his immunity.

But in August 2019, Yura started having bowel problems. Yura went through all the examinations until the doctors made a final diagnosis. Nonspecific ulcerative colitis is a chronic disease that involves a strict diet and therapy. Given the state of Jura’s immunity, doctors recommended Khumir’s biological product, a new generation drug that can remove the inflammatory process in the intestines and bring the disease into remission. The price of the drug is 12 850 UAH per 1 pack. Yura needs 2 packs per month. 

"I have no words to describe the state of my helplessness when you cannot help your child with anything because you cannot afford even half of this drug from your salary...", Yura's mother addresses with despair to all concerned people.

Name: Petrenko Yurii, 07.06.2009

City: Dnipro

Diagnosis: primary immunodeficiency: deficiency of antibodies with close to normal levels of immunoglobulins (D 80.6). Nonspecific ulcerative colitis (left-sided), severe course. Chronic gastroduodenitis, unrelated to H. pylory, incomplete remission. Malabsorption syndrome. Protein-energy deficiency of the first degree (IMT 15.1 kg / m2). Bilateral recurrent secretory otitis media, remission stage. Chronic nasopharyngitis. Lymphadenopathy of the cervical lymph nodes. Bronchial asthma, infectious-allergic form, persistent course, partially controlled. Chronic bronchitis, exacerbation. Seasonal allergic rhinitis, remission stage. Atopic dermatitis, period of remission. Undifferentiated epileptic encephalopathy. Onychodystrophy on the big toes. Flat-wave deformation of the feet. Disorders of mental and speech development, motor alalia.