SMA will not defeat me! 2

Two-year-old Demyd needs rehabilitation to continue developing and strengthening his muscles. The boy was born with spinal muscular atrophy type 1 – a severe genetic condition in which the muscles gradually weaken due to damage to the motor neurons.

SMA type 1 is the most severe form of this disease: without treatment, it leads to complete loss of mobility, and over time the respiratory muscles also weaken, causing life-threatening complications. Demyd showed symptoms from the very beginning: his muscles were extremely weak, he barely moved his arms and legs, and could not hold his head up. Upon hearing the diagnosis, his parents faced the greatest challenge of their lives.

But because treatment was started in time, the disease was unable to take away what matters most – the ability to develop. Therapy halted its progression and gave Demyd something that would not have been possible without intervention: time, movement, and hope for new skills. And now rehabilitation must continue, as it is absolutely vital for him.

"Thanks to rehabilitation, we are seeing noticeable improvements: Demyd bears weight on his arms better, holds himself up for longer, and feels his body's balance with more confidence. Overall, he is getting stronger. We especially want to highlight that his arms – which were our main focus at this stage – have strengthened significantly, and we are already seeing real, positive changes," says Demyd's mother.

Demyd is an active little boy who genuinely wants to move. And he is already doing it – step by step. Please support him on this journey.