Angelina has a rare disease. 8
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In November Angelina turned 8 years old. There were many gifts and warm words, and was there the whole family. But not so long ago, Angelina and mother practically "lived" in hospitals: from the age of two and a half years, the girl was constantly ill. The doctors could not give the girl an exact diagnosis... And only two and a half years ago, the specialists of the Kiev Immunological Center established the cause of Angelina's frequent illnesses. The girl has a congenital genetic disease: primary immunodeficiency, which deprives the body of its natural defenses.
Now Angelina's health is normal. The girl goes to school with her twin sister Melania. Angelina really likes all the activities. But with the English language it turns out not very much. The girl studies diligently. Of course, not everything is easy for her, she needs to put in more effort, but she tries! The teacher praises and helps her in every way.
Angelina loves to paint and attends art school. Recently, the girl can often be seen in the library. And although she does not really like to read, she chooses books with interest and sometimes reads in the reading room. Angelina has a dream: to learn how to roller skate. "She is cheerful and mischievous", the mother writes about Angelina. "She does not sit still for a minute. Runs, has fun and makes us laugh!".
Doctor's recommendation: immunosubstitution therapy. For the course of treatment, you need 5 fl of the Bioven-mono 50 ml for a total amount of 13 274 UAH. This is a lot of money for Angelina's parents. Until recently, they independently coped with the costs associated with the treatment of their daughter.
Let's support this wonderful girl together! We are sincerely grateful to UBB donors for the support of this child during the previous stages of the collection! Thanks to you, friends, Angelina received several times the drug necessary for treatment.
| Full name: | Onopriienko Anhelina, 09.11.2012 |
| City: | Dergachi, Kharkiv region |
| Diagnosis: | Primary immunodeficiency: activation syndrome of RI3K-delta type 1 (APDS1) due to heterozygous gof mutation in the PIK3CD gene (generalized lymphadenopathy, hepatosplenomegaly, severe hyperplasia of the lymphocyte ring with obstructive apnea syndrome, nodular hyperplasia of the intestine, immune cytopenia) (D.84.8) |
| ID: | 6723 |
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Charity donation
19.12.2020 00:17
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595.62 UAH |
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Charity donation
19.12.2020 00:00
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100.00 UAH |
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Charity donation
18.12.2020 23:32
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47.95 UAH |
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Charity donation
18.12.2020 23:07
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51.01 UAH |
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Charity donation
18.12.2020 22:16
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500.00 UAH |
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the project is completed.
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Done - reports are ready