Unique, but not conquered by the disease

Bilal is 8 years old, аnd he has the rarest chromosomal abnormality, the only case: Emanuel syndrome. The child's body does not perceive ordinary food: the parents immediately have to call an ambulance and save the son in intensive care. We are collecting funds for buying Resource Junior special food for 6 months.

Bilal was born at term, but underweight. He slept constantly, could not suck, food was not digested, the child suffered from vomiting and gastrointestinal disorders. The doctors of the maternity hospital in Zalishchyky could not find the reason for this condition of the newborn and sent him to Ternopil.

The child was immediately taken to the intensive care unit. Mother Mariam managed to teach her son to suck with a nipple and swallow, so that there was no need for droppers and probes. On the 10th day they were discharged home.

At the age of nine months, Bilal and his mother moved to Australia for a year. There, the doctors finally managed to make an accurate diagnosis.

In the case of Bilal Emanuel's syndrome is manifested by hydrocephalus, deafness, lack of speech, heart disease, weak muscle tone. The development of the child corresponds to one year of age. Thanks to the efforts of his mother, Bilal learned to hold his head, sit up and sit, crawl. If nothing bothers, the boy calmly plays with soft toys, watches his favorite cartoons.

The child developed entropion (inversion of the lower eyelid inward) due to blockage and inflammation of the sebaceous gland. Since Bilal has a heart defect, anesthesia is contraindicated for him. With difficulty, parents managed to find a doctor in Ukraine (in Chernivtsi) who is ready to perform an operation on the boy. Its cost is 2 500 euros.

After the boy suffering Covid three times, the condition of the gastrointestinal tract worsened: Bilal even once fell into a coma due to anemia and a deficiency of proteins, fats and carbohydrates. It took a long time to find the right special food. Doctors stopped the choice on the Resource Junior; besides it, the body does not absorb anything.

The financial situation in the family is very difficult, so your help is needed to purchase a six-month supply of special food Resource Junior. Please, help Bilal!