Unique, but not conquered by the disease. 2

Bilal is the only child in Ukraine with Emanuel syndrome, which is manifested by hearing impairment, lack of speech, muscle weakness, developmental delays, and heart disease. At the age of 1.5, the boy suffered a coma due to nutritional deficiencies and anaemia. The gastroenterologist prescribed Resource Junior formula, as Bilal's body absorbs only this formula. 
In accordance with the agreement No. 21 on cooperation between the ICF ‘Ukrainian Philanthropic Marketplace’ and the Charity Operator “POMAGAYEM” dated 31.08.2020 and the additional agreement No. 21.278 dated 29.08.2024, the project ‘Unique but not conquered by disease.2’ was posted on the website of the ICF ‘UBB’ - dobro.ua - to attract donations for the purchase of special food for Mohammad Bilal. 
During the fundraising, it became necessary to use part of the funds raised on the website of the Ukrainian Philanthropic Marketplace - dobro.ua - to purchase special food for the boy. Therefore, according to the letter №499 dated 04.09.2024, we received the collected UAH 10 615.00 (ten thousand six hundred and fifteen hryvnias and 00 kopecks) to the account of the Foundation and continued to collect on the dobro.ua platform. Another UAH 68,400.00 (sixty-eight thousand four hundred hryvnias and 00 kopecks) was credited to the Fund's account on 13.11.2024, according to letter No. 685 dated 12.11.2024.
During 2024, we purchased and transferred Resource Junior formula for Bilal for a total amount of UAH 28,825.00 (twenty-eight thousand eight hundred and twenty-five hryvnias and 00 kopecks).
This year, the boy's family has also repeatedly turned to us for help in purchasing special food. Thus, in January 2025, we supported the boy in the amount of UAH 9,238.50 (nine thousand two hundred and thirty-eight hryvnias and 50 kopecks), in February - in the amount of UAH 9,306.00 (nine thousand three hundred and six hryvnias and 00 kopecks), in March - in the amount of UAH 9,162.00 (nine thousand one hundred and sixty-two hryvnias, 00 kopecks), and in April - in the amount of UAH 7,793.70 (seven thousand seven hundred and ninety-three hryvnias, 70 kopecks).
Bilal's condition is currently satisfactory. The most important thing is that he managed to survive the winter without a hospital stay. The spring weather is finally warm, allowing the boy to walk outdoors twice a day. Regular walks, a regimen and good nutrition contribute to better stomach function and good sleep. 
Among the positive changes in the boy's condition, it is also worth noting that he has begun to remember places he has been before. Bilalchik points with his pen to the street where he needs to turn to get home or to his grandmother. He started to pay more attention to the environment, play more and smile more.
Mum Maryam writes: "Thank you for your big heart, humanity and support. Thanks to you, goodness is getting closer."
We plan to use the remaining unused funds in the amount of UAH 14,689.80 (fourteen thousand six hundred and eighty-nine hryvnias and 80 kopecks) to meet Bilal's needs in 2025, and the project is still raising funds.
We are sincerely grateful to the donors and partners of dobro.ua for their help, and to the UBB team for their long-term cooperation!

Reports

(Progress) Descriptive project report dated 12.05.2025 Financial report (Progress) dated 12.05.2025 Invoice 1 Bank transfer receipt 1

Delivery note 1 Invoice 2 Bank transfer receipt 2 Delivery note 2

• 1
• 2
• ...
• 4

Project documents

Project placement letter