Help little Bohdan! 2

Dear friends, do you remember Bohdan? This is a boy who lives with a rare diagnosis – Smith-Lemli-Opitz syndrome – a genetic disease that occurs in only one in 40,000 children and is caused by a disorder of cholesterol synthesis in the body. However, this diagnosis was not made immediately; at first, Bohdan was mistakenly diagnosed with Down syndrome in the maternity hospital. Although laboratory tests did not confirm this, the problems persisted: the boy did not feel hungry, sucked milk sluggishly, and began to lag behind in development.

When Bohdan was one year old, his mother took him to Turkey, where he was eventually confirmed with this rare diagnosis. Subsequently, Bohdan began receiving special treatment, diet, and rehabilitation.
Now Bohdan is 6 years old. He is already walking, understands spoken language better, smiles at the world, responds to his name, but still does not speak, has developmental delays and mild cognitive impairment. All of this requires constant support from specialists and rehabilitation, which his only support, his mother, cannot afford. The woman cannot work because she takes care of her son around the clock. The family has exhausted all resources, but we can help. Every hryvnia is a step towards a new word, a pain-free movement, a new skill. Bohdan needs our support.