Help little Bogdan! 3

Seven-year-old Bogdan Aldabaev has a rare diagnosis – Smith-Lemli-Opitz syndrome. This genetic disorder occurs in only one in 40,000 children and is caused by a disruption in cholesterol synthesis in the body.

After his birth, doctors suspected that Bogdan might have Down syndrome. Tests did not confirm the doctors' assumptions, but the baby's health problems did not go away. So the question of "what is wrong with the child?" remained open. Bogdan did not feel hungry, sucked milk sluggishly, and began to lag behind in development.

When the boy turned one, he and his mother traveled to Turkey, where local doctors finally gave Bogdan this rare diagnosis.

After that, the boy began to follow a diet, receive treatment, and undergo rehabilitation. Bogdan still has delayed psycho-speech development, limited understanding of spoken language, hyperactivity, and does not speak. Fortunately, the treatment is bringing improvement: Bogdan's walking, attention, concentration, and fine motor skills have significantly improved, and he has started to make new sounds.

Doctors recommend that the boy undergo regular comprehensive rehabilitation, but a lack of funds is getting in the way. Bogdan cannot do without our support.