The Butterfly in Pain
The Butterfly in Pain
Active

The Butterfly in Pain

The project is carried by
Started: 06.06.2025
Zaporizhzhia
Active
Still needed
42200.00 UAH
Funded
0%
Total goal
42200.00 UAH

Mylana has a rare genetic condition called epidermolysis bullosa. Her skin is so delicate that even the slightest touch can cause painful blisters, which then turn into open wounds. Children with this diagnosis are often called "butterfly children" because their skin is as fragile and delicate as a butterfly’s wings.

Every day is a real challenge for Mylana. What seems like everyday routines for others – getting dressed, having breakfast, taking a few steps – can become a source of pain for her. Constant bandages, dressings, and healing ointments are a regular part of her life.

Mylana spends most of her time at home. She can only go for walks when the weather is cool, as heat worsens her condition. She fills her days watching cartoons or making diamond mosaic pictures – slowly and carefully, using both hands to avoid new wounds.

At 15 years old, Mylana weighs just 17 kilograms. She suffers from chronic anemia and severe protein deficiency. To maintain her strength and give her body a chance to recover, she needs special high-calorie nutrition: Nutridrink protein yogurts and Nestlé Nutren Optimum porridge. She also needs healing creams and ointments every day to help her skin recover.

Our goal is to raise funds to cover Mylana’s special nutrition for four months. This will give her the strength and energy she needs to keep going.

Please support Mylana!

Full name: Mylana Shcherbyna, 02.05.2010
City: Zaporizhzhia
Diagnosis: Epidermolysis bullosa, dystrophic form
ID: 10247
Make a good first!

Your help is needed more than ever. Support the project to add some goodness to this world!

Support

Similar projects
Violetta wants to walk. 2
Support
Health
Violetta wants to walk. 2
Violetta was born in August 2022 at a time when her family was forced to leave their home due to the ene…
Help little Bohdan! 2
Support
Health
Help little Bohdan! 2
Dear friends, do you remember Bohdan? This is a boy who lives with a rare diagnosis – Smith-Lemli-Opitz …
Let's help Mariya overcome the disease
Support
Health
Let's help Mariya overcome the disease
Masha has been suffering from severe diabetes mellitus for almost 3 years. Constant changes in glucose l…
Just don't miss my chance! 3
Support
Health
Just don't miss my chance! 3
Diana is only 3 years old, and her fight for life began with her first breath. Difficult childbirth, asp…
Show All