Zlatoslava has a rare disease. 2

7-year-old Zlata has a rare diagnosis – a hereditary metabolic disorder: glycogen storage disease type 1B. Zlata studies online and dreams of sitting at a desk alongside her peers.

Zlatoslava was born severely premature (1,350 g), survived a difficult birth, sepsis, and long weeks in intensive care. But thanks to the competence of the doctors and God's grace, the child's life was saved – and so was her mother's. Indeed, the first months of Zlata's life were marked by trials: seizures, an enlarged liver and spleen, repeated stays in intensive care units, and multiple hospitalizations. After costly genetic testing at Okhmatdyt, the primary diagnosis was established for the little one. This came as a complete shock to the family, as their older son was entirely healthy. None of them had ever known or even heard of such a disease before.

Zlata's condition is accompanied by constant metabolic crises, neutropenia, chronic infections, gouty polyarthritis, and severe pain. She also needs to monitor her glucose levels continuously.

At 3.5 years old, Zlata lost the ability to walk. After lengthy treatment and surgery, she got back on her feet, but her condition later worsened – the pain returned, her joints were affected, and her mobility became restricted once again. Instead of a carefree childhood – hospitals, IV drips, and round-the-clock supervision. Her mother is with her at all times.

The family is financially exhausted and is asking for support in order to continue treatment, including purchasing glucose monitoring sensors. We ask all caring people to support Zlata. Every hryvnia is a step toward treatment, pain relief, and the chance for a full childhood. Together, we can give her hope and the possibility of a life free from constant suffering.