Angelina has a rare disease. 6

Looking at this perky girl, it is hard to imagine that she lives a very difficult life. Angelina has primary immunodeficiency is a congenital disease that completely deprives a child of natural immunity. She spends all her childhood in hospitals – viruses, infections, pneumonia do not allow the girl to live fully. And only taking immunoglobulins allows her to forget about her constant diseases for a while. UBB donors have repeatedly helped Angelina, and thanks to this help, the girl now lives like an ordinary child. 

Angelina goes to school with pleasure, studies diligently, but very tired. Behind is already half the school year. The girl tried a new sport for herself – taekwondo. And although she really liked, but it had to leave this sport. Angelina is still weak and does not tolerate stress. But in her free time she attends a drawing club. "Now the baby is drawing winter", the girl’s mother says. "Christmas tree, sky, at home! Before that, it was nature, family. And most importantly - the sun always shines in her drawings!".

Angelina loves to do different crafts. Since the New Year is coming soon, then all the crafts on New Year's themes. "We made houses out of ear sticks, a Christmas tree", says the mother of the child. Made different trinkets from matches! Angelina continues classes with a speech therapist. She takes an active part in the life of the class. She is friends with everyone in the class, but for some reason more with boys. Perhaps they more organically accept her stormy temperament. Recently, initiation into first graders took place, and Angelina participated in various sketches. And now the girl is preparing for the New Year performance – she should play the Mermaid. But the main thing, of course, is not to get sick on the eve of the concert.

Recently, Angelina was in a routine checkup at the hospital and underwent examinations. The test results are good, and ultrasound is also better. And in mid-December, Angelina received the first vaccination. "Thank God everything is fine", the girl’s mother says. "Now plans to drip, and remove the adenoids. To make it easier for her in the new year!". Angelina has two sisters, the eldest Valeria and the twin Melania. The family lives on funds earned by the father. Alas, there is not enough money for everything. After all, only the treatment of Angelina requires significant amounts. To support immunity, the girl already needs the Bioven-mono drug, 4 bottles of which cost 14,729 UAH. The family asks for help with the treatment of their daughter.

We used to collect money for Angelina at UBB. View previous projects you can see here.

Name: Onopriienko Anhelina, 09.11.2012

City: Dergachi, Kharkiv region

Diagnosis: primary immunodeficiency: activation syndrome of RI3K-delta type 1 (APDS1) due to heterozygous gof mutation in the PIK3CD gene (generalized lymphadenopathy, hepatosplenomegaly, severe hyperplasia of the lymphocyte ring with obstructive apnea syndrome, nodular hyperplasia of the intestine, immune cytopenia). Bilateral, chronic purulent middle otitis media. Chronic hepatitis C, high replicative activity, genotype 1b. Viral hepatitis B: Inactive carrier of HBsAg. Syndrome of biliary sweat. Carious lesions of the teeth